Monday, September 29, 2014

I wasn't kidding. Cooper is a Real Life Bubble Boy

Great news!
Well only slightly good news!
Ok really it's kind of crappy news.

Today we called the allergist because Cooper just hasn't been eating. We also needed to find out the results from his previous visit and the lab work they ordered so that we could see his GI doctor and get the appetite stimulant started.
Before you go any further, if you haven't read about that visit, click HERE.

They were able to fit us in this afternoon due to a cancelation and we jumped on it!
We got in and got some results.

First thing first: weight check.
Normally at this doctor they keep him fully clothed, shoes and all, when they weigh him.
We wanted to know his actual weight since it is a significant concern. 
So we stripped that boy down to his britches (diaper) and had him step on the scale.
HE IS UP TO 20.8 LBS!!!!!
THANK YOU JESUS!
We do chalk a lot of that up to water weight because he is only drinking his bottles at this point since he refuses everything else we give him. But we will take the weight gain either way!!

Some other good news. Cooper is being put back on the Acid reflux medication he was on for a few months after his surgeries, as well as an allergy medication that doubles as an appetite stimulant.
WOO-HOO!!
That should help make him more comfortable and also more hungry!

Now for the "Crappy news".
We were hoping to have the Doctor tell us that a lot of the allergens he originally tested positive for were just sensitivities.
Wishful thinking.
I think it is time to accept that in Cooper's life, his motto for health issues is:  "Go big or go home".

It turns out there are even more things he is allergic to.
Joy.

Let's review the original list shall we?
Whole egg
Cow milk
Wheat
Soy
Oat
Corn
Cashew
Fish mix
Tree mix A (Trees)
Weed mix B (Weeds)
Summer grass mix (grass)
Dog (environment)

Now that we see those, lets add a few more to the list..
Quinoa
Beef 
(SERIOUSLY WHO IS ALLERGIC TO BEEF?!)
Peanut
Egg whites
Pork
Oranges
Tomato
Rice

After reading the list we received at the first doctors visit, I thought,"WHAT ELSE IS THERE?!"
Apparently Cooper wanted to be an extreme over achiever and show me what else there was...

So now at this point the allergist gave us these exact instructions:
Focus on his Elecare 
(Completely hypo-allergenic formula he has been on since he was 2 months old)
and
"He may have white potato, carrot and apple. He may have the welch's fruit snacks as well"
I crap you not.
Coopers diet is now formula, carrots, apples, white potato, and fruit snacks.
The fruit snacks were at my request because it is the only thing he will eat and he obsesses over them. Since they don't contain any of the allergens he is allowed to eat them. But from now until his next visit in December, He will be living on those five items.
Wish us luck...





Being shy

Modeling

Jeff would make a noise and Cooper would giggle and he would smile and look back. I couldn't catch the smile.


Comfy?



For real. That is the Doctor's orders for his food intake..

Grocery store buying his allergy approved food.













2 comments:

  1. I guess the other good news is it'll make for easy and cheap grocery shopping. I'm glad Jeff got to go and help you entertain. Looks like he will be a chicken and turkey eater. No beef, pork, fish or maybe just a vegetarian. :) I'm thinking of the bright sides. You've made it this far, mama. Good job. Give Poopster a lovins from me.

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