Friday, October 23, 2015

When all you want is wine, but you're on a diet..

One thing I hate about social media and blogs, 
is the fact that people only share the best versions of themselves and their lives.
You can look at someone's Instagram or their blog and be in awe of how perfect everything seems.

I definitely fall for it.
I sometimes gage my life based on what is presumed to be perfection by the images that I see.

I try to be as honest and open about our life in every aspect.
It isn't perfect by any means.
But we love it, and we like to share more good than bad.

That being said,
welcome to my life.

Wednesday.
Normally I like wednesdays.
We go to feeding therapy in the morning, 
run our errands in town,
go home for Coop to get a quick nap, 
then we go to my favorite thing ever. 
Cycling class.

That is my typical Wednesday.
However,
this Wednesday,
I desperately needed wine.

We went to feeding therapy, where Cooper ate a decent amount (banana chips only)
then it turned out Jeff was going to be in the area for a haircut so we met for lunch.
We normally don't see Jeff at all on Wednesday's because we are gone before he wakes up, and not home until after he leaves for work, so it was definitely a great little surprise!
That is where the good day ended.

Before we left, Jeff took Cooper to the bathroom, but he didn't need to go.
Typically he lets us know when he needs to and if we take him when he doesn't need to, he doesn't go.
So we went on with our errands and I repeated through the stores and the drives to let me know if he needed to go, to which he said "ok, mama"
He is always great at it.
Until Wednesday.
When we went into Fry's we were walking around for a little, then without any warning or letting me know he had to go, he peed his pants, just a little.
It was our last stop of the day before naps, so after wrangling him to come to the front
(of course he was a 2 year old who didn't want to listen at this particular moment)
we quickly paid for our groceries and went home.

We had just enough time to get home, change him, get a new bottle, then head back out to the gym.
So we had the same conversation. 
"Do not go pee pees in your pants, ok Cooper?"
"Ok, Mama"

I drop him off in the kidzone and go to my class.
After the class was over and I headed back to get Cooper, I see that he isn't in the main area.
Turns out he had peed his pants and needed a change so he was mid change in the bathroom with a worker helping him.
They put him in new underwear and new pants 
(pants had "child watch" written down the stripes so he essentially was wearing the cone of shame, in potty training terms "pants of shame")
and he had gone through to his shoes.
My child is now mismatched, wearing the pants of shame, shoeless.
I needed to run to Walmart on my way home to get paint 
(and a bottle of wine due to the day I had been having, and didn't have any in the house due to my diet)
But of course I couldn't go.
I couldn't be that mom.
I couldn't be put on "People of Walmart".
I couldn't be the mom coming straight from a sweaty workout, 
carrying her mismatched, pants of shame wearing, shoeless child through Walmart, carrying a tube of paint and a bottle of wine.
(Just picture that, will you? peopleofwalmart.com here I come)
I had to uphold some standards.
So even though that wine was tempting me to lower my standards,
we went straight home.

When we made it home,
I was getting Cooper's bottle ready when I heard him say,
"Mama, I pee peed"

Oooooof Course he did.
In the pants of shame, no less.

He has now peed his pants 3 times today for those keeping track.
I am deeply regretting my standards at this very moment.

I put him in time out this time because this is getting ridiculous.

I now have three pairs of pants, three pairs of underwear,
a pair of socks and a pair of shoes in the washer ready to be washed.

He is stripped half naked, and I am cleaning up, and he drinks his bottle.

When I say it is bedtime, I go to get his pajamas, which are on the leather ottoman, I notice they are wet.
So I ask Cooper if he spilled his bottle on them.
He says,
"No, Mama. I peed on them"
I said, 
"excuse me?"
"I peed on them Mama"

Because of course, when he peed his pants of shame, he happened to be sitting on top of the pajamas he would be wearing that night.

**Insert speechless emoji here**

I now have three pairs of pants, three pairs of underwear, a pair of socks, a pair of shoes, and a pair of pajamas all covered in the urine of my 2 year old.

 I take him upstairs and as I go, Cooper stops me and says
"Mama, I peed there"
again,
"Excuse me?"
"Mama, I peed there" 
while pointing to the bottom stair.

I didn't believe him,
so I put my hand down on the stair, and sure enough, it was wet.

WHEN I SENT HIM TO TIMEOUT FOR PEEING HIS PANTS HE PEED ON THE TIMEOUT STAIR

I.  CANNOT.  MAKE.  THIS.  UP.

I didn't know whether to laugh or cry.
So I settled into a laury.
(see what I did there??)

So that was my Wednesday.
I took him up to his bath to clean the filth that is my child, 
and brought him to bed.
The last several weeks he has been crying every night when I leave the room,
 and not just a real cry,
but this fake whine-cry that ends up sounding like a pigeon
(true life mom confession, sometimes I don't even realize it is him awake and not just one of the few dozen pigeons that have inhabited our backyard)
But tonight, he sings his night night song with me, cuddles me while he does it, kisses me and when I lay him down, he says he wants to sit up with his cars, so I say, " Ok, I love you baby, sleep tight"
he says "Love you" then I leave the room.

When I walk into my room to finally shower,
he yells
" I LOVE YOU MAMA!!"

<3 

Pants of shame





Tuesday, October 6, 2015

OH MY GOSH!

EVERYONE!
I HAVE AN EXCITING ANNOUNCEMENT!

Today I decided to bake some cookies for the huz while it was raining.
He and the neighbor devoured them fresh out of the oven!
Oatmeal chocolate chip cookies for the win!

While I was giving the cookies to the boys,
Cooper was begging to eat them!
So I searched for a recipe.
I remember having a conversation with a woman about a potato flour cookie but I couldn't find it so I searched through my messages and found it.

A COMPLETELY SAFE COOKIE FOR COOPER!
SERIOUSLY!

Guys! 
I made something completely from scratch, that avoids all the allergens, and it freaking worked. 
It finally worked!!
My first success! 
And...
HE. IS. OBSESSED.

COOPER ATE A COOKIE TODAY THAT IS COMPLETELY COOPER ALLERGEN FREE!
And he had a blast making them!

AHHHHHH!!!!!!!
I don't know that I am conveying my excitement correctly.

This is the first cookie Cooper has ever eaten.
Ever.

WE CAN MAKE COOKIES FOR CHRISTMAS THIS YEAR THAT ARE SAFE FOR COOPER!
I could cry!















He really wanted them. He didn't want to wait to bake them.











SO EXCITED

GUYS!
GUYS! GUYS! GUYS!

I officially have started my crafting company!
I just purchased my P.O. Box and picked up the keys!
IT'S REALLY HAPPENING!

I will be focusing primarily on Wooden decorative signs, but if anyone is interested in other things, just contact me and I will see if it is something in my wheel house to be able to create for you!

I have been working on signs, 
and accumulating enough materials to be able to just hit the ground running, 
since the beginning of this year 
and I am SO FREAKING EXCITED to finally be ready to go!

Thanks to my mom, I have the perfect name.

All Coop'd Up

Feel free to check out the few things I have done, and I will continue working and continue to add!
If you are interested in a sign I have made, 
or have an idea of one that you don't see, 
send me an email and I will work with you to bring them to life!

I hope you all will check it out, share and like the page and contact me if you are interested!!

allcoopdupdesigns@gmail.com


Monday, October 5, 2015

Chickpeas are a go!

One of the hardest parts of Cooper's allergies is when you are crammed on time with fitting in food for scopes.
You may not see the allergist by the time you need to start the new foods so you can fit enough trial foods into the time frame before the scope.
For example,
This time, we won't see the allergist for over a month from when his scope was preformed.
At that point he should already be starting on his 3rd food for the trial in the scope.
The problem is, you have to have these foods approved, and depending on the situation, have him allergy tested by blood test before you give him the foods.
Instead of being able to discuss what the allergist thinks we should add, it is then on us to figure out what we want or think.
Then it comes down to calling and asking if these foods are ok and if we need testing, or if we can just add them before we see him and go from there.

We called before Cooper's scope and asked if we could add strawberry and grapes before we see the allergist and he ok'd it, but we realized that we needed one more food to fit in this trial and by the time we saw him, we wouldn't have enough time to add it if we didn't add the third before the appointment.
So we called and played phone tag yet again with the office that is TERRIBLE at getting back to you.
But this time we were called back in the 48 hour window (WHAT?!? That can actually happen??) and we were given the ok for chickpeas!
We will discuss the final food when we see him at the end of the month, which we plan on it being whole psyllium husk.
That and chickpeas are supposed to be staples in vegan, gluten free, rice free, corn free, nut free, soy free (WHEW!) baking.
Which is exactly what we have to do for baking.
That is why it is so. freaking. hard. to make him anything other than raw foods and why I have asked  for help so many times!
I am praying that these foods will help me be able to make breads, cupcakes/cakes (Hello actual cake for his 3rd birthday!!!!!!!!!!) and muffins with all his other safe foods to be able to give different textures!
Here's to hoping this works!
And probably lots and lots of Pinterest fails.

xoxo

Sunday, October 4, 2015

Gastric Emptying Test

Monday morning, we had Cooper's solid gastric emptying test.
They told us he could eat one of three options for the test: eggs, oatmeal, Rice Krispy treats.
When the scheduler called, and gave me those options, I told her he can't have any of those. 
So they were going to contact the radiologist and find out if we had different options, and I was going to contact the allergist to find out if we could let him have one just this once.
When he got back to us, they decided he could have the Rice Krispy.
Then a week later we got a call at 11AM on the friday before the test, and they told us how much he had to eat, about a chicken nugget and a half's worth, and I said he won't eat that much of anything regularly, plus we didn't know if he would even eat the Rice Krispy since he has never eaten them before.
What else were our options.
What can we do if he doesn't eat that much?
She gave a few more options that he could have, including sunflower butter, and actual chicken nuggets.
I called our allergist, but he doesn't work on Fridays.
Normally, you call and leave a message and his office is TERRIBLE at getting back to you. 
I constantly have to call back after the 48 hour window, and ask to speak to someone directly.
I'm telling you, I have no idea how working parents of kids who have multiple doctors do it.
If I worked, I would be on the phone my entire shift some days.

I called and went through the front office and said I needed to be put in direct contact with someone who can help me because I know our allergist doesn't work fridays, but we were just informed of new things, at 11 AM, that he could have for his emptying test, which is at 9 am the following Monday, so I needed an answer from someone in the practice.
I wanted to make sure those weren't big things that could cause a reaction.
I wasn't comfortable making a choice on my own.
Especially about the sunflower butter (I literally blended sunflowers in the food processor to make a butter.)
They said they were going to get back to me after I talked to them, which of course they didn't, and we just decided to hope that Cooper would eat enough of the Rice Krispy.

I thought it would be a good decision to give Cooper the Rice Krispy the day before, and let him scope it out on his own.
We all had one and even our neighbor joined in.
We told him it was candy and we let him take the treat, wrapper and all, and do his own thing.
 He took his time, but eventually ate a third of it!

So the next day, we get to the scope early because we were trying to beat rush hour, and luckily they took us back early.
They told us he needed to eat half the treat in 7 minutes.
I laughed.
I told them he has never eaten that much.
Ever.
She put the radioactive particle on the top left corner and told me to try to get him to eat as much as possible and she would be back in 7 minutes.
One thing about Cooper is when you force him to eat, he isn't going to. 
I was pushing him to eat, and he was getting frustrated and said, "no" and started to walk away in the room.
I found some toys and we bribed for bites.
He ate about a cm off of the top of the treat and refused more, then his time was up.

We were told when we scheduled the test that it was a 2 hour test, but I didn't know that it was 2 hours strapped to a machine.
Poor Cooper.
He held my finger the whole time, as well as the edge of the machine over him. <3
We put Cars on and for the most part, he just laid there.
Then he said he needed to go potty.
We had regular underwear on because he is trained during the day and we didn't realize this was what we were going to be doing.
So we asked for a diaper, and had to unstrap just his legs, and try to change him.
He did well the rest of the time.
And he was able to pick out a new beanie baby when he left.
He chose a rhino.
<3











Results from his test. 
We will know the results and if he ate enough to get conclusive answers soon!

The middle screen's little light is the radioactive particle

He passed out in the car  with the sucker half in his mouth.
 I took this when we were stopped, then took the sucker from him because, clearly this isn't safe :)


Woke up all smiles :)




Saturday, October 3, 2015

Feeding Therapy Friday's

We have loved working with Cooper's feeding therapist!
She is great!
We started seeing her in March of this year, and as soon as we introduced completely new foods to Cooper in her presence (Chicken and avocado) Cooper started to slow his progress.
He didn't want to try the foods.
So we used the Steps Model to make sure he is comfortable with the foods.


Essentially you work your way up from tolerating being in the same room as the item, to interacting, to smelling, touching, tasting, and finally eating.
There are categories and steps within each of the major stairs as well.
For example
We can get Cooper to lick the chicken, or bite the chicken,  all within the taste portion.
Or his favorite is "rocketing" his food, where he has to bite into the food, then spit the piece out into his "All done bowl".
This gives him the power and control that he lacks in the basic feeding times due to him not having many choices of what to eat.
All of these are encouraged to get him to one day, finally eat a bite and swallow it.

That day has been 5 months in the making but,
IT HAPPENED!
COOPER FINALLY ATE AND CHEWED MULTIPLE PIECES OF CHICKEN!

Ironically it was the day after the scope, when he technically doesn't have to eat it daily anymore, but a win is a win!

There is a lot of bribing when it comes to working with Cooper at meal times.
We use bubbles mostly because they are instant and not lasting so you don't have to take the toy he just earned from eating one thing away to have him do it again.
This lesson we moved on to bigger and more interesting toys and he was hooked!
Our feeding therapist brought out an original Fisher price Super Spiral Speedway and Cooper was obsessed.
If anyone ever finds one at a kids resale shop, or a garage sale, please pick it up and message, call, text, email, snapchat ,  or whatever contact info you have of mine, use it to get in touch with me, because I am on the lookout for one!
The only ones I can find new are branded ones like, Batman, Cars, or Toy Story, and the cheapest I have found is $101.00!
UNREAL!
It's two spirals and about 15 inches tall. 
$101.00
Mind-blowing.
Used online for the original is still 35 bucks which is a little much.
Anyways,
Cooper loved this toy and ate SO MUCH CHICKEN!

At this point his feeding therapist says it is behavioral when he doesn't eat it because he doesn't have any signs of textural issues and he doesn't gag or act like he doesn't like it.
It is purely control.
So we will still try it, but I won't push it as often now that he doesn't technically need it.

Cooper is hit or miss in feeding therapy.
The week before this INCREDIBLE week, he refused every single thing we gave him, even his preferred foods, and he literally ate half a baby carrot.
I'm not even talking about the bigger ones that come in the veggie platters.
I'm talking about the petite ones you buy seperately.
So we were pretty discouraged leaving that session.
But boy, did he make both myself and his therapist happy this week!!

Friday was a good day and this friday's session he ate more as well.
He refuses to eat it when I offer it at home, so there was a week between of him not eating it, but he did it again, so that is progress.
This Friday's session he wasn't super interested in the cars, but we still were able to have him eat some by making small pieces jump around in the bowl and he had to catch them and eat them!
Which he loved!
Oh 2 year olds with feeding issues, how you make us jump through hoops!

*Videos at the end!*


Playing with the toy

This is what made our stubborn little guy try chicken!!!!

$101.00
Still speechless.
Look at how tall it is compared to a 2 year old in a highchair.
Ridiculous.







Friday, October 2, 2015

Scope 3

Last Thursday, Cooper finally had his 3rd scope.
We had to be downtown by 7AM for check in 2 hours earlier than his appointment at 9AM
(Which had been rescheduled the day before from 10 with a check in at 8)
Considering where we live,  and there being only one main road out to the interstate (which is a 16 mile stretch), we had to leave pretty early to make sure we missed rush hour.

With everything else in Cooper's life,
the one thing we can count on him always doing well for us is sleep.
He sleeps a good 12-13 hours a night, plus he naps for around 2 hours a day.
So he did not like having to leave at 5 AM.

We wound up getting there an hour early for our check in, but Cooper did pretty well with that.

As soon as we were called back, Cooper had the Royal treatment because Anma (Grandma) had been pulling him around the waiting room in a wagon, and the nurse took over.
He loved it!
Then after he rushed out of the wagon to get everything he needed, he was able to choose a beanie baby to play with and snuggle while he had the procedure, and then he could keep after.
*The amount of hospital beanie babies, knitted blankets and sewn quilts this kid has at this point is ridiculous* 
He chose a black puppy.

Side note.
Cooper came down with a cold the day before the procedure.
I called as soon as I saw him showing symptoms and was put in contact with his doctor's nurse fairly quickly.
They told me as long as he didn't spike a fever, and he wasn't coughing anything up, we could proceed. 
I asked for a number to call in case it changed when he woke up in the morning, and was given that info.

Then GI Scheduler (who didn't know what she was doing planning the scope- previous post) called  and said she heard Cooper had a fever and wasn't coming in and wanted to reschedule.
Wrong. 
And wrong.
UGG.

So he was doing ok the morning of the scope.
He had the nose of a faucet, and his eyes looked so sick (partially from lack of sleep the night prior with a cold, refusing his nap the day before, and being woken up 4 hours early from bed).
The nurse who came in to check his bands to make sure everything was correct showed immediate concern.
We explained what the Doctor's nurse had said, and she said ok but did you talk to the anesthesiologist?
Clearly. 
Because we aren't given the name of the anesthesiologist until they walk in minutes before the procedure to meet you and ask you if you have any questions.
We told her we did not because we didn't have any way of knowing who it was before this exact moment.
She rushed to get him to make sure that they were ok with doing the procedure.
* When under anesthesia, your lungs don't work very hard, so if there is liquid or congestion in the lungs, it can cause permanent damage when they wake up*
Great.
He came in and wasn't worried.
WOOHOO! WE CAN FINALY GET THIS SCOPE DONE!

After we met with the anesthesiologist, Cooper's GI doctor came in.
We love him. 
He is friendly, actually listens to what you have to say, and is genuinely concerned for your child.
After this, they sent in the Hospital Life man.
He comes in to make things less scary for the little ones.
He brought the mask that the anesthesiologist uses to put them under.
and Bubbles.
*Instant best friends*
Cooper loved it after the bubbles were involved.
They caught a bunch of bubbles with the mask to make it less scary, then had Cooper try to put it to his face, which he did in a second because he wasn't scared anymore.
We played with that for a few minutes.

Then it was scope time.
I hate watching Cooper be put under, but I have done it every single time he has been (that they allowed)
It keeps him somewhat calm.
He is terrified going in there and seeing all these people in masks looking down at him, so I hold his hand and get right next to his face so I am the last thing he sees.
He has to take about 10 big breaths of it and then he relaxes and is out, and it's my cue to leave.

And wait.
It takes about 30 minutes from start to finish for the procedure.

They came out right at 30 minutes to call me back to see him.
There are two types of kids waking up from anesthesia.
The first is super relaxed and still somewhat out of it, giggly and fun.
The second is angry, confused, and constantly crying until it completely wears off.
Who wants to guess which one Little Man is?

If you guessed type 2, you would be correct.

We hear him before we see him.
And the poor nurse who is holding him as he is fighting her and crying in her face.
I grab him and have him all bundled up and eventually he calms down.
Then passes out on me.
We let him sleep a little while before we have them take out the IV and send us on our way.
It was a rough day.

*Results are posted after the pictures, so keep scrolling all the way down!*

An extremely rare occasion when I am dressed and driving before the sun is up.


Royalty



Royalty





Catching Bubbles with his mask



So sleepy


Scope pictures

passed out


SCOPE RESULTS

Guys!!
GUYS, GUYS, GUYS!

COOPER'S SCOPE CAME BACK WITH ZERO EOSINOPHILS!!

That means 
Apples,
Bananas,
Carrots,
White potato,
Whelch's Fruit Snacks
and now
Coconut
Chicken
and Avocado are safe foods!!

HE NOW HAS 8 SAFE FOODS!!!!!

So we are starting our trial of grapes 
(which he loves because he used to eat them like crazy when he was younger)
then Strawberries,
hopefully Chickpeas and whole Psyllium Husks
(Which are, based on my research, staples in Vegan, gluten free, grain free, nut free, soy free baking)

Wish us luck!

xoxo


Thursday, October 1, 2015

RAGE

A little preface.
Last week we were scheduled for Cooper's 3rd scope.
Scheduling things with his doctors seems to be an issue, for so many reasons.
It's ridiculous.
That is where this post begins.

SO! MUCH! RAGE!

Cooper's scope to find out if the current foods he is trialing, are safe for him, has been in the works since May.
MAY.
I'm going to clarify again, in case you didn't get it.
MAY.

We have been trying to have both Cooper's GI (for his allergen food trial scope) and his ENT (there is thought that his residual Laryngomalacia may be having an affect on him still) coordinate and do both of their scopes together because who would want to put there 2 year old under anesthesia more than once if they can help it?
So back in May when we saw both Doctors for their followups (we routinely see all doctors every three months), we discussed doing the scope together.
Both doctors agreed that that would be the best choice.
So we set out to do it.
We contacted both schedulers and they said they were going to work with both of the doctors schedules and try to get this done soon.

We haven't done as many food trials as we normally would have, but we have been DESPERATELY trying to get Cooper to eat the foods orally.
We have been going to weekly feeding therapy since April, and introduced a few new foods that he was not interested in and I couldn't really do anything with some of the ingredients (buckwheat, coconut and pork)
So we adjusted after about a month and a half and chose different foods that were high in calories that we eat on the regular to try to get Cooper interested in them: coconut, chicken, and avocado.
He has refused to eat the chicken and avocado.
We were trying to avoid giving him an out (blended diet through his tube), because we knew, if he knew he would get it any way, there wouldn't be incentive to eat it orally.
So we spent more time with this set of foods trying to push it orally.
Then when he was still refusing it orally, we decided to finally go the blended diet route after offering it to him to eat first.
However, that brought along its own set of issues.
In order to include the amount of food needed daily for the eosinophils to show up on the scope (if allergic), there was a large volume of blended food that has to be pushed with a syringe through his tube.
It also needs to be blended fairly thin, which adds more liquid, and he already has issues tolerating the volume he already was taking.
We also were having issues with getting the correct tubing, which we wound up having to begin with.
It was a MESS.
Then as we were adding more volume to Cooper's intake,
he couldn't handle it, and was throwing up.
So we were adjusting volume of total formula for the day as well as struggling to figure out how to do a blended diet on our own.
Figuring out how to do a blended diet is scary and stressful because if its not done right, too much pressure can be added to his stomach and cause issues.
Having never had to use a 60cc syringe to actually push his formula through the tube because we had always used gravity when we needed to do a smaller amount of formula,
 we didn't know how much pressure was needed, how much resistance was normal, and how thick/thin the mixture had to be.
We also figured out that the mixture hardens slightly when left in the syringe, which causes more pressure until that part is released.
We couldn't give him all 5 oz of the blended diet at once just like we don't do an entire formula feed at once.
We did it over a 30 minute period.
So we would leave the syringe filled in the beginning because we were feeding every 5 minutes, which unknowing to us, was adding more pressure as we were giving the feeds because it slightly hardened in the top of the syringe.

All these things I wish we had been taught instead of being thrown into it on our own.
It's stressful trying to figure out if you are doing everything right.

Anyways.
The time frame for the scope normally is every 3ish months, because you need to get the results back from the previous scope so you know if it is safe to add new foods based on if it comes back clean or with a high eosinophilic count, plus you need time to introduce the new foods separately 2 weeks apart, and finally each food needs to be in the system for 6 weeks.
For example:
Previous test time frame week 11-12: Scope
Start of week 1: results
week 1: New food- Grapes
week 2: Grapes
week 3:New food- Strawberries + Grapes
week 4:  Strawberries + Grapes
week 5:New food- Chickpeas + Grapes + Strawberries
week 6: Chickpeas + Grapes +Strawberries
week 7: Chickpeas + Grapes +Strawberries
week 8: Chickpeas + Grapes +Strawberries
week 9: Chickpeas + Grapes +Strawberries
week 10: Chickpeas + Grapes +Strawberries
week 11-12: Scope

So if everything had gone right and worked out, we would have had the scope done in beginning of August.
We were waiting on the schedulers to coordinate, and the main surgeon's (GI) scheduler was in charge of this.
I called every few weeks to get an update.
They finally decided it would most likely work September 24.
I was a bit irritated because we needed to make sure we had one more scope in by the end of the year, and this was pushing his regular scope back further and in that time frame we could trial 2 more foods which would help when we go to feeding therapy having a bigger variety of foods to choose from.
But we agreed.
We were told we were still waiting on ENT to confirm.
Every time I called, GI's Scheduler said she was still waiting to hear back, would call again and put pressure on his office for an answer.
The friday before the scope (which was the following Thursday), I still hadn't heard back from GI and she said she still hadn't had an answer, so I decided to call the ENT scheduler.
I was then informed that GI had not been in contact with them in over a month, and they had already said the date was not going to work because he is not in the same hospital as GI that day and has other obligations.
I was furious and I explained the situation and asked what we were supposed to do then if that date won't work?
She asked why this wasn't taken care of when they had the last recorded conversation back in beginning of August.
I told her I had no idea, that I had been contacting GI's scheduler and I had just kept being told that they were waiting on you.
She said that she could see if one of his colleagues would take the case for the scope only (which they apparently NEVER do).
We were told we might be able to make it work a week after the original date we had set but they had to get it approved and then also check with that doctors scheduler, so we would hear back on Monday.
Monday afternoon came around and I hadn't heard back so I called again and had to leave a message.
I hear back Tuesday afternoon
(mind you our original scope is scheduled for 2 days from now at this point)
She says that the other doctor's schedule isn't open so it won't work and we will have to set up another scope date separately.
I was ticked!

At this point, I hadn't heard anything back from the GI scheduler.
She calls me Wednesday, the day before the scope, to say she finally got in contact with them and it just wasn't going to work for this scope, but if we schedule the next one now, we can have it coordinated because 10 weeks is PLENTY of time to get that taken care of.
I about flipped.
CLEARLY 10 WEEKS WILL WORK IN MY FAVOR AS OPPOSED TO THE  4.5 MONTHS THAT YOU HAVE ALREADY SPENT MESSING EVERYTHING UP!
I somewhat yelled at her, as she continued to make up excuses and repeatedly tell me in the most slow paced sentences I have ever heard, for 30 minutes while I tried to wrangle Cooper while we were standing outside of the gym waiting to go in, that it just wasn't going to work, and she will work at making the next scope happen between the two of them.
This of course I repeatedly refused because it is something that our ENT wanted done months ago but agreed to wait to scope together in the next 2 months after seeing him in May so we didn't have to put him under for the same area to be scoped twice.
I told her we would have to schedule it separately because we were not waiting 7 months to have it done, when he wanted it done in 2.
She continued repeating herself until I finally told her I was on a schedule and had to go, and she said she was going to work on making it work between both Doctors for mid December.
 (not sure if she was just not listening, or not listening, or possibly not listening when I said we were not going to do that, but who knows. Even if I had asked her if she was not listening before when I said no, she probably wouldn't have been listening.)
I told her go ahead and do what you need to do, and we will contact ENT separately.

Needless to say, that gym session was one of my best sessions yet.








Catch Up

We have had such a busy week!
I'm trying to catch up on blogging about it.
I will be working on 1-2 blog posts daily, from now through the weekend to get them up and share with you all of the new things that happened with Mr. Cooper!
So keep an eye out!

xoxo