We are finally getting close to some answers with this kid of ours!!
THANK YOU, LORD!
Ever since Cooper had his endoscopy almost two weeks ago,
we have been waiting for the results.
THEY ARE FINALLY IN!
Sort of.
We have the first set of information on a long track of figuring out how to handle the situation.
The results of the endoscopy showed that Cooper has Eosinophilic Esophagitis (EoE).
EoE is an allergic condition.
There is inflammation or swelling of the esophagus.
Eosinophils are a kind of white blood cell that help engulf and kill bacteria and microorganisms. They also participate with control of allergic reactions and diseases. Normally they function to protect the body.
Normally there aren't any eosinophils in the esophagus, however, with EoE, there is a large number of them in the tissue.
Just like any other thing with this child, Cooper doesn't fall into the "Normal" category.
In Cooper's case, what is causing him to have the disorder is that he has too many of these eosinophils in the one organ.
In order to be diagnosed with this and have a food allergy of some kind in his case, you need to have at least 15 eosinophils in the organ that normally doesn't have them.
Cooper, who is quite the little over-achiever, has 34.
Way to excel in something bud.
You couldn't just be freakishly tall or have unusual colored eyes?
Instead you have to compete with your imaginary competitor for "most hospital and Doctors visits before turning two"?
We love you bug, but you have by far exceeded your imaginary competitor.
You have gained the title.
Now knock it off.
Now that we have awarded that trophy, let's get back to the results.
When they told us he has some sort of food allergy, we didn't quite understand how that allergy would affect him the way that it has; especially considering he eats mostly fruits and some breads, and his formula is an Amino Acid-Based medical food where all the proteins are removed and it is created in a way to make it completely hypoallergenic.
It says on the dang can "for severe food allergies and GI disorders"
So where the allergy is coming into play, for all these months, doesn't make sense.
When we did some research on the disorder, a couple of our confusions were cleared up.
For example, the first three symptoms of the disorder are as follows:
-Difficulty feeding, including feeding refusal and feeding intolerance
-Poor weight gain
and
-Decreased appetite.
DING DING DING, we have a winner!
That combined with his Residual Lyrangomalatia, makes it difficult to get him to eat.
So now we have an appointment with an allergist to see what he is allergic to and to see what we need to change in his diet in order to help make it more comfortable.
We are also starting feeding therapy (we have a meeting with an organization to see what he qualifies for as far as treatment options. The initial speech therapist recommends once a week for the next 3-6 months. We will see what the treatment plan will be come monday when we have the meeting.)
After we see the allergist, we will also be putting Cooper on an appetite stimulant.
Hopefully now that we will have the medical side figured out by the end of the month, God willing, getting him to eat will be a little easier than it has been and he will finally gain some weight!!
Fingers crossed!
The results of the endoscopy showed that Cooper has Eosinophilic Esophagitis (EoE).
EoE is an allergic condition.
There is inflammation or swelling of the esophagus.
Eosinophils are a kind of white blood cell that help engulf and kill bacteria and microorganisms. They also participate with control of allergic reactions and diseases. Normally they function to protect the body.
Normally there aren't any eosinophils in the esophagus, however, with EoE, there is a large number of them in the tissue.
Just like any other thing with this child, Cooper doesn't fall into the "Normal" category.
In Cooper's case, what is causing him to have the disorder is that he has too many of these eosinophils in the one organ.
In order to be diagnosed with this and have a food allergy of some kind in his case, you need to have at least 15 eosinophils in the organ that normally doesn't have them.
Cooper, who is quite the little over-achiever, has 34.
Way to excel in something bud.
You couldn't just be freakishly tall or have unusual colored eyes?
Instead you have to compete with your imaginary competitor for "most hospital and Doctors visits before turning two"?
We love you bug, but you have by far exceeded your imaginary competitor.
You have gained the title.
Now knock it off.
Now that we have awarded that trophy, let's get back to the results.
When they told us he has some sort of food allergy, we didn't quite understand how that allergy would affect him the way that it has; especially considering he eats mostly fruits and some breads, and his formula is an Amino Acid-Based medical food where all the proteins are removed and it is created in a way to make it completely hypoallergenic.
It says on the dang can "for severe food allergies and GI disorders"
So where the allergy is coming into play, for all these months, doesn't make sense.
When we did some research on the disorder, a couple of our confusions were cleared up.
For example, the first three symptoms of the disorder are as follows:
-Difficulty feeding, including feeding refusal and feeding intolerance
-Poor weight gain
and
-Decreased appetite.
DING DING DING, we have a winner!
That combined with his Residual Lyrangomalatia, makes it difficult to get him to eat.
So now we have an appointment with an allergist to see what he is allergic to and to see what we need to change in his diet in order to help make it more comfortable.
We are also starting feeding therapy (we have a meeting with an organization to see what he qualifies for as far as treatment options. The initial speech therapist recommends once a week for the next 3-6 months. We will see what the treatment plan will be come monday when we have the meeting.)
After we see the allergist, we will also be putting Cooper on an appetite stimulant.
Hopefully now that we will have the medical side figured out by the end of the month, God willing, getting him to eat will be a little easier than it has been and he will finally gain some weight!!
Fingers crossed!
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