Friday, July 25, 2014

Update

So we have officially seen all the specialists! YAY!
However we are still not sure what is going on with the kiddo. BOO!

This week we had the Barium swallow study to see how Cooper was taking his liquids and if he was aspirating when eating/drinking. He rocked that one! Zero issues!
No limitations there. 

Then we met with speech therapy to do an evaluation for feedings.
They want us to completely change how we go about feeding him.
Right now since he won't eat many things, the therapist is concerned that he will start to be more picky and refuse to try things for most of his life because we are feeding his pickiness (pun intended)
We have been going about feedings in the way we thought to be most logical
i.e.  giving him whatever he will eat just to make sure he gets calories.
Apparently with my child...
Wrong way to go.
The therapist thinks part of Coopers feeding issues are actually sensory issues with the textures so she wants us to do Occupational therapy (at least an eval) as well as speech therapy.
She wants us to start feeding cooper 6 meals a day,
cut out all the snacking,
only allow water between meals,
and split his meals into 1 thing he loves, 1 thing he likes sometimes, and 1 new thing.
What does that equal??
ONE CRANKY ONE YEAR OLD!
Fun...
So after 2 days of that we saw the GI doctor and he has different opinion.
He wants Cooper to focus on gaining weight and getting calories in through formula and Pediasure and focusing less on solids.

So what the heck do we do?!

He also ordered an endoscopy so we can see if Cooper has any food allergies since he really hasn't been exposed to many things since he won't try anything.
Also, the formula he has been on is completely hypoallergenic so he hasn't had any different kind of proteins or anything that can be an allergen for most of his life.

So we are thankful that we have some more information and ideas of how to move forward.
After the rest of these tests, and seeing the ENT again in a few weeks we should know more!
Fingers crossed! 

Check out some pictures from our Doctors visits.
( I apologize, these aren't the best quality or the greatest shots)

In the main waiting area waiting for the swallow study




In the 2nd lobby of the swallow study

Cooper playing with mama's phone while we were waiting

Sitting and playing like a big boy

It's Mr. Potato Head!


getting ready for the X-ray of his neck

Starting the Barium swallow study! It's crazy how big he is compared to the last time! ( Check out the previous post to see the difference!)

Swallow study

just "hanging" out at the Doctor's office

No Cameras mom!



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